Anandarajah A, Dart H, Martin-Giacalone B, Bacchini M, Drake BF, Colditz GA, Fields RC, Ding L, Linnenbringer E. Optimizing a Patient-Centered Report of Somatic and Germline Genetic Test Results. JCO Precision Oncology. 2025 Apr;9:e2400927. https://doi.org/10.1200/PO-24-00927

Church AJ, Bhattacharyya O, Culver JO, Amzaleg Y, Linnenbringer E, Smart M, Ip-Toma C, Rivera AR, Davis B, Ricker C, Lenz HJ. Patient-centered integration of tumor and germline genetic results can improve cancer care. Nature medicine. 2025 May 27:1-4. https://doi.org/10.1038/s41591-025-03686-8

Crossnohere NL, Schuster AL, Blair CK, Bland H, Carpten JD, Claus EB, Colditz GA, Diehl D, Ding L, Drake BF, Fields RC. Optimizing participant and community engagement in cancer genomic sequencing research. Genetics in Medicine. 2025 Jun 11:101483. https://doi.org/10.1016/j.gim.2025.101483

DeCamp M, Barnard JG, Ritger C, Helmkamp LJ, Begum A, Garcia-Hernandez S, Fischmann R, Gay N, Gonzalez-Fisher R, Johnson KC, Lennox LA. Engagement Methods in Brain Tumor Genomic Research: Multimethod Comparative Study. Journal of Participatory Medicine. 2025 Aug 21;17:e68852. https://doi.org/10.2196/68852

Lenz HJ, Craig DW, Johnson KC, Verhaak R, Bhattacharyya O, Davis B, Wesley C, Byron SA, Willman C, Kelley L, Claus EB. Challenges in the return of molecular tumor profiling results. JNCI: Journal of the National Cancer Institute. 2025 Sep 10:djaf251. https://doi.org/10.1093/jnci/djaf251

Mendez JS, Sanchez J, Zhao C, Pankratz VS, Sussman AL, Brown-Glaberman U, Cargill S, Mishra SI, Stern MC. Understanding the reasons for declining to participate in cancer genetics and genomic studies in the USA: a scoping review protocol. BMJ open. 2025 Apr 1;15(4):e093998. https://doi.org/10.1136/bmjopen-2024-093998

Venkataraman V, Weber L, Fisher L, Khalaj A, Siegal-Botti E, Diehl D, Janeway KA, George S, Mack JW. Supporting Participant Engagement in Cancer Genomics Research in Rare Cancers: A Qualitative Study of Patients, Caregivers, and Advocates. Cancer Control. 2025 Jul 22;32:10732748251364041. https://doi.org/10.1177/10732748251364041

Venkataraman V, Martin-Giacalone BA, Drake BF, Salmi L, Claus EB, Schuster AL, Bridges JF, Lenz HJ, Willman CL, Diehl D, Janeway KA. Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality. Journal of Clinical Oncology. 2024 Dec 1;42(34):4018-22. https://doi.org/10.1200/JCO.24.00347

Chaudhuri AA. Cell-Free DNA Liquid Biopsy: The Epitome of Personalized Precision Oncology. Radiation research. 2023 Jul 1;200(1):92-5. https://doi.org/10.1667/RADE-23-00044.1

Claus EB, Verhaak RG. Targeting IDH in low-grade glioma. The New England journal of medicine. 2023 Aug 17;389(7):655-9. https://doi.org/10.1056/NEJMe2305602

Earland N, Chen K, Semenkovich NP, Chauhan PS, Zevallos JP, Chaudhuri AA. Emerging roles of circulating tumor DNA for increased precision and personalization in radiation oncology. InSeminars in Radiation Oncology 2023 Jul 1 (Vol. 33, No. 3, pp. 262-278). WB Saunders. https://doi.org/10.1016/j.semradonc.2023.03.004

Heffernan AE, Wu Y, Benz LS, Verhaak RG, Kwan BM, Claus EB. Quality of life after surgery for lower grade gliomas. Cancer. 2023 Dec 1;129(23):3761-71. https://doi.org/10.1002/cncr.34980

Mack JW. The day one talk, 20 years later: what have we learned?. JCO Oncology Practice. 2023 Feb 17;19(4):164. https://doi.org/10.1200/OP.23.00005

Rodriguez NJ, Ricker C, Stoffel EM, Syngal S. Barriers and facilitators to genetic education, risk assessment, and testing: considerations on advancing equitable genetics care. Gastroenterology. 2023 Jan;164(1):5. https://doi.org/10.1016/j.cgh.2022.10.025

Schork NJ, Beaulieu-Jones B, Liang WS, Smalley S, Goetz LH. Exploring human biology with N-of-1 clinical trials. Cambridge Prisms: Precision Medicine. 2023 Jan;1:e12. https://doi.org/10.1017/pcm.2022.15

Schuster AL, Crossnohere NL, Paskett J, Thomas N, Hampel H, Ma Q, Tiner JC, Paskett ED, Bridges JF. Promoting patient engagement in cancer genomics research programs: an environmental scan. Frontiers in Genetics. 2023 Jan 18;14:1053613. https://doi.org/10.3389/fgene.2023.1053613

Schuster AL, Hampel H, Paskett ED, Bridges JF. Rethinking patient engagement in cancer research. The Patient-Patient-Centered Outcomes Research. 2023 Mar;16(2):89-93. https://doi.org/10.1007/s40271-022-00604-9

Schuster AL, Crossnohere NL, Bachini M, Blair CK, Carpten JD, Claus EB, Colditz GA, Ding L, Drake BF, Fields RC, Janeway KA. Priorities to promote participant engagement in the Participant Engagement and Cancer Genome Sequencing (PE-CGS) Network. Cancer Epidemiology, Biomarkers & Prevention. 2023 Apr 3;32(4):487-95. https://doi.org/10.1158/1055-9965.EPI-22-0356

Semenkovich NP, Szymanski JJ, Earland N, Chauhan PS, Pellini B, Chaudhuri AA. Genomic approaches to cancer and minimal residual disease detection using circulating tumor DNA. Journal for immunotherapy of cancer. 2023 Jun 22;11(6):e006284. https://doi.org/10.1136/jitc-2022-006284

Postel MD, Culver JO, Ricker C, Craig DW. Transcriptome analysis provides critical answers to the “variants of uncertain significance” conundrum. Human mutation. 2022 Nov;43(11):1590-608. https://doi.org/10.1002/humu.24394

Rebbeck TR, Bridges JF, Mack JW, Gray SW, Trent JM, George S, Crossnohere NL, Paskett ED, Painter CA, Wagle N, Kano M. A framework for promoting diversity, equity, and inclusion in genetics and genomics research. InJAMA Health Forum 2022 Apr 1 (Vol. 3, No. 4, pp. e220603-e220603). American Medical Association. https://doi.org/10.1001/jamahealthforum.2022.0603

Varn FS, Johnson KC, Martinek J, Huse JT, Nasrallah MP, Wesseling P, Cooper LA, Malta TM, Wade TE, Sabedot TS, Brat D. Glioma progression is shaped by genetic evolution and microenvironment interactions. Cell. 2022 Jun 9;185(12):2184-99. https://doi.org/10.1016/j.cell.2022.04.038

PE-CGS_PublicationPolicy_v9.0

Advancing Data Sharing through the Cancer Moonshot - Kai Tan, PhD & Liz Salmi (OPTIMUM)

Count Me In: Partnering with Patients to Define the Landscape of Rare, Aggressive Sarcomas - Katherine Janeway, MD (Count Me In)

Engagement of American Indians of Southwest Tribal Nations in Cancer Genome Sequencing - Cheryl Willman, MD & Jeffery M. Trent, PhD (JUNIPER)

This Unique Network Closes Research Gaps in Cancer Genomics - Bettina Drake, PhD (WU-PE-CGS) & Leah Mechanic, PhD

LinkedIn:

Participant Engagement & Cancer Genome Sequencing (PE-CGS) Network

https://www.linkedin.com/company/participant-engagement-cancer-genome-sequencing-pe-cgs-network/

Twitter: @PECGSnetwork

To sign up, go to the pecgs.org website, click on the 'PE-CGS Member Repository' button in the upper right corner, and select 'Create an Account'. Enter and submit your account information. After creating an account, please reach out to the Coordinating Center (pe-cgs@osumc.edu) for access. 

If you had an account prior to the new website launch, you do not have to go through this process again.

All PE-CGS Network members are invited to join the dedicated PE-CGS Workspace on Slack. There you will find a general area to chat about topics relevant to whole Network, as well as separate channels devoted to each subcommittee. 

Review the Getting Started guide and learn how to use Slack, if it's new to you. It might be helpful to adjust your preferences for notifications.

Join the PE-CGS Slack here